exfoliative cheilitis blog

Factitial cheilitis can present as exfoliative cheilitis when it is due to attention-seeking or factitial behaviour or an obsessive - compulsive tendency to pick or chap the lips (exfoliative). He stated that I must also use a sealer to like carmex to protect the outside, but time and the antihistamine will heal the damage done to my inner layers of my lips. I think it its important to consider emotional distress. I went to get the root canal and had that taken care of. I tried that for a couple of days. I have recieved the analysis result from the biopsy I did earlier this summer: it did not show anything significant/new except a general inflammation of the skin, i.e. The peeling skin was very thin and the skin underneath was pink and felt normal. Exfoliative Cheilitis Cure. Here is the list: metronidazole tablets 200 mg (one tablet three times a day for two weeks) + Daktarin oral gel, Erythromycin 250 mg (2 tablets three times a day for two weeks + Daktarin oral gel + Corsodyl mouth wash, and finally Trimethoprim 200mg (one tablet two times a day for two weeks) + no dairy products. Notice the small area on the left side of the lower lip: it shows some signs of peeled skin and is slightly more red. Meditation, walking in green areas, exercise... We can not forget that we must consider the person. Then every second day for two weeks. On the forth day I can usually peel everything off without too much force. I have done about four this year and have never experiences any problems though. with a message to my. Read more about it in, 1. It took a couple of days before I could met with a doctor and during this time my lips got worse (more red, warm, inflamed, chapped, more crusts). . Since the chinese doctor had trimmed my lips and I had started to use vaseline again my lips actually looked pretty decent. at my local hospital: dental materials, food (mostly fruits and greens) and food additives. . * In 2005 I decided to try alternative treatments and met up with an. * When I came back to Sweden I visited doctor#7. I have been in contact with one of the authors of the article but she has not been able to name the specific ingredients of the ointment (she does not seem fluent in english and maybe did not understand my question). I have not experienced any side effects. He gave me the steroid creme Fucidin (a mixture of Hydrocortison and anti-bacterial ingredients) to put on my lips for two weeks. But there is room for more - so come on people, join! 1-2 times a year the EC flares up (more inflammation, the peeling area becomes bigger and the flakes thicker). That did not help. On June 1 2009 my lips started to behave unusual again. I recently went 2 weeks without and without rubbing off skin. Some internal hormonal imbalance is the real cause behind this recurrent peeling of skin. He said he knew exactly what it was: inflammation of the lip - cheilitis. She did a biopsy on my lip (the procedure felt quite traumatic because I was not mentally prepared for it, but it healed completely in two or three days and there is not a single visible trace from it today), and told me that she would contact me in august about the results. She did not know what to do and gave me Aerius 5mg (a histamine antagonist). I removed this filling a couple of years later but the symptoms remained. They get dry, the lower lip peel, the skin underneath has been a different variation of "raw" (from mild to very raw – no blod though). The main purpose of the group is not necessarily to chat but to get an idea of how many of us there are in the world - right now - dealing with Exfoliative Cheilitis. He put another layer of liquid nitrogen on my lips and perscribed antihistamine medication for another two weeks and said to come back in two more weeks, but I see a huge improvement. So, stress is something that we are all exposed. I layed off the fruit but nothing happened, but the oil keep the lips from drying out. Visit his blog, give him some love for putting his soul on the line. It made all of the crusts come off really easy. It consists of calendula and animal fat (pig fat), that's it. I don't know the reason for this, but instead of speculating about it I am just going to try the treatment so I can cross it off. My lips slowly slowly started to get a little better during this year (less swelling, a little less redness), although the peeling of my lower lip never stopped. What is exfoliative cheilitis? About two month ago I found the fairly new case report, According to the case report "topical Calendula officinalis ointment 10% has successfully cleared the condition", in just 15 days. Chronic Lip Licking is often seen in children and is also referred to as Exfoliative Cheilitis, or Cheilitis Exfoliativa. * Between the first and third doctor, I had a meeting with the skin doctor at Karolinska Institutet skin department. PS. As I can remember, I had felt something was going on the day before. And each time I did it, I would do it 3 or 4 times consecutively (so I guess you could say I did it around 30 times a day). Doctors always refer to ‘putting more vaseline or lipbalm’ on the lips, but it makes my lips more dependent on it (caused bleeding when the lipbalm is not applied for 4 hours … It would take away the redness of my skin but that only lasted a few days. * Dental filling. The ointment is yellow, medium thick and melts quickly on your lips. Skin on lower lip starts to build up into yellow/white crusts, and does not peel as easily as before. * I also visited a dermatologist. The last one is a lette from an England girl that suffers wih exfoliative cheilitis. After about four weeks he just looked at my then quite crusty lip, shrugged and started to trim them with a small scissor. So now I have started to apply a cream with probiotics. Somehow I got the impression when I met her the first time this summer that she would not "let met go" so to speak, like all the other doctors have done, but I guess I was naive. I gently rub off the loose skin with a cotton swab every morning and evening. No more appointments, no evaluation of the treatment, no further tests. I called my dentist, he wasn't available till Tuesday and they recommend that I go to the emergency room. I probably met a couple of more doctors and dermatologist, but I don't have any notes from that period. If you have any questions you can post them in the comments field and I will try to answer them as soon as I can. Since january 3 fifteen more people have joined, and the group is now up to 28 members from around the world. * When I came back to Sweden I visited doctor#7. Doctors prescribed hydrocortisone or strong antibiotic creams, all to no avail. Exfoliative cheilitis (EC) is the inflammation of the lips which is an exceptional chronic condition and is basically the eczema of the lips. It was a surprise. I have had exfoliative cheilitis since 2003. Lips Status before starting the treatment, My lips have been behaving pretty much the same as the last couple of months. I’ve been experiencing exfoliative cheilitis for over 15 years. If you want to connect with people with EC, consider joining the Facebook group. ... “Value of Openness” Blog. Until then I will continue using Protopic. This is probably one of the better remedies for this condition. This means fewer updates (not that I do that very often ;), and it will take longer for me to respond to the mails, comments and Facebook request. I also had a sore mouth on the inside and as a result of that, most of the day a burnt tongue, which made it difficult to eat. Here, the outermost layer of skin cells is in a continuous state of sloughing, which makes the lips unable to retain moisture or heal themselves. FYI I have been using Prevex cream on my lower lip for around 2 years. You will find people all around the world in the same or similar situation as yourself. Allergic tests (dental materials, food (mostly fruits and greens) and food additives), Biopsy (not a treatment at all actually but still worth mentioning), Olive Oil lip balm (worked as good as the beesvax), Possible causes (only very wild guesses, I don't really have a clue). * My dentist also checked my fillings but could not find anything unusual about them. The sensation is very similar to olive oil. All in all there will be none. I have not heard of anyone that was cured completely. To allow the good to prosper, however, I needed to stimulate blood (hydrocortisone). (only very wild guesses, I don't really have a clue). * Party. Finally I knew what to call it, and I was not alone! Please note that this is the result I got with this particular brand. I have been rubbing a thin layer of cream on the affected areas of my lips twice a day (in morning and before going to bed). My lips are slowly feeling better on the inside, but it is a slow process for the lips to heal. My lips have been good the last couple of years. * Between the first and third doctor, I had a meeting with the skin doctor. As I wrote in my last post I have been in contact with one of the authors – Janete Almeida – of the article, Topical Calendula officinalis L. successfully treated exfoliative cheilitis: a case report, . The skin beneath looks pretty normal, but become dry and starts to harden and crust within a few days. I blog VERY occasionally nowadays. [I have been tested for thyroid hormones and the result did not show anything unusual]. Big mistake just looked gross nothing changed, new peel grew back every other day. My lip status is pretty much the same as in the last post; the skin on my lower lips peels in thin flakes. This is what my lips looks like today. This doctor also sent my file as a referral to the Karolinska Institutet skin department in Stockholm, to examine my peeling lip condition I had told her about. If anyone reads this review and has info on exfoliative cheilitis and what may have helped them please leave a comment. Exfoliative Cheilitis has changed me and is still changing me. Fordyce spots starts to appear on my upper lip during the year. I may edit this post every now and then. It usually heals up pretty in a day or two. Less hugs and kisses (since I broke up with my boyfriend). It is not easy to deal with Exfoliative Cheilitis since there is not a quick treatment. He tried to treat me with. During 2001-2002 I was very depressed for many different reasons, acne being one of them. It helped a little but it's toxic if eaten. I wake up one morning with very dry, red, inflamed lips. histamine antagonist). I created the Exfoliative Cheilitis Facebook Group four years ago in september 2009 and I am very happy to see that it has grown over the years. Both lips become dry if I don't use a lip balm. Basically she told me "we can't just do random test in order to find anomalies, and there is not enough people with your condition to initiate any research". Hi David, Before I begin I want to say I think you're truly a brave soul for writing about this annoyingly traumatic condition so openly, and even posting pictures of your trials. I have also used Borage oil for the last three weeks but I have not noticed any significant effects yet. Finally, I am not offend. The lip looks best one of two days after a peeling. You may not use any images on this site for. The condition cause me to change the way I eat, drink, brush my teeth and wash myself among other things. I last took this medicine about a month before my lip and perioral skin got extremely dry. Contact me on: exfoliativecheilitis [at] gmail [dot] com Lips status: nothing new to report. I got my herpes symptoms after the first week I moved in. If there is any doubt please let us know. Stay tuned, and stay strong people. I did another dental filling a week before the symptoms appeared. As I have written in another post I suffered from exfoliative cheilitis for 8 months. Currently experimenting with paleo-inspired lifestyle (eating-/exercise/sleep habits etc). Hi, my name is David and live in Sweden. You can read the Protopic Patient Information Leaflet in it's entirety here. The ointment I use is called Maria Trebens Calendula Ointment and I found it at a local health store. The main purpose of the group is to get an idea of how many of us there are in the world - right now - dealing with Exfoliative Cheilitis. It all started when I was 10 years old. , and to blog and youtube the results. It did not help at all. This doctor also sent my file as a referral to the Karolinska Institutet skin department in Stockholm, to examine my peeling lip condition I had told her about. The dermatologist recommended a food allergy test (I went to my primary Doctor to do so, they did a blood test and nothing came up) and said that the sensation I was feeling was an allergic reaction and to never drink that drink again because I'm allergic to one of the chemicals they add into it. I have been using it two times a day for 39 days. I stopped immediately but the symptoms remained. About three weeks ago I started a Protopic 0.03% (topical tacrolimus) treatment prescribed by my doctor. I no nothing about images and about digital manipulation. I have not noticed any significant improvement. I can relate to much of what she is saying. She told me to use. Exfoliative cheilitis; any tips? There are quite some articles online about this, just google "protopic" and "cancer". Lower lip is still peeling, about every 3th-4th day, but only small, thin segments of skin. I hope you all had a great holiday and New Year! If you wish to register and upload some pictures, I can give you an opinion and discuss treatment options. The medical doctor told me she had read up on the few articles out there and also discussed treatments with collegues. steroid cream on my lips. Just leave your email address and I'll send you a private message. She did not even ask how (or if) I would cope with this, which I felt was a little strange considering that she has just confirmed that I have a chronic condition to which there is no consistent successfull treatment (except in one documented case), and that will not be researched because to few people suffer from it. So far nothing have happened, either good or bad. I have not noticed any improvement, my condition is pretty much the same as before. Some General EC Tips: 1. The patient, as you did, had used many other medications before. If you have not joined already, please consider it. However there is one documented case where Protopic have been a successful treatment (, "Exfoliative cheilitis successfully treated with topical tacrolimus", Authors: M. Connolly, C. Kennedy. There is also a paragraph in the patient information leaflet: "Since commercial availability a very small number of people who have used Protopic ointment have had malignancies (for example, skin or lymphoma). 1) Purchase new, small nail clippers Peeling your lips with your hand aggressively will only stop your healing process. Sometimes this cycle differ a little. That's when I decided to go to a dermatologist. Twitter. The facebook group has 68 members at the moment and the wall seem to be alive and kicking with activity. 2. Privacy & Cookies: This site uses cookies. I have had exfoliative cheilitis since 2003. I had a phone conversation with my doctor on 21 december last year and since I had no results with Protopic 0,03% she decided I should boost the percentage: I am now doing a three week trial with Protopic 0,1%. I learned so much and this blog is an accumulation of what I learned online from people who I don't know (but am eternally grateful to), from my own experience and what suited me, and what doctors and friends have suggested. This is the summary of my trial with Protopic 0.03%. My thought process was this: first, the bad bacteria had to be killed (alcohol). Day 7 it all starts over again. As you have seen in the paper, our purpose was to, describe a case of recalcitrant exfoliative cheilitis that responded to treatment with a standardized topical preparation of. I also took a blood test to see if I had any vitamin. He gave me another steroid creme called. Other than that I focus on eating healthy, regular exercise, doing stuff that makes me happy, stress management, and getting good quality sleep. But I need to do some more testing before I can confirm that. It usually settles after about 2 weeks. I have not read this report myself in it's entirety but you'll find what seems to be a summary in a forum post here. Human touch boost the immune system, maybe that is why my lips were so healthy during 2006-2009? Hi guys. and I'll send an invitation back to you. He gave me the steroid creme. All the activity on the group wall is a bit overwhelming but check it out and see if it's for you. I also asked here about the images in their study being identical and that they looked digitally manipulated, if you open the two pictures in two different tabs in your internet browser and then flip quickly between them you will see that it is the exact same picture. He told me that my lips probably had been dry and that (unspecified) bacteria had settled in and caused an infection. This happens for no apparent reason (it does not seem to matter whether I am stressed or not, eating healthy or not, sleeping enough etc). So please take a couple of minutes to fill in your answers. I did not get any significant reactions. The next week, i had pain in my # 14 tooth but ignores it because I had a dentist appointment the following Tuesday. She tried to treat me for four weeks with different kinds of pills dilluted in water (Natriummur LM I think they were called) without result. He told me that my lips probably had been dry and that (unspecified) bacteria had settled in and caused an infection. That said, I chose to write this publicly (and not in a private email) in case it will help others.My cheilitis was not nearly as bad as yours, but I've had it on and off for two years. As I have written in another post I suffered from exfoliative cheilitis for 8 months. This is the most important purpose of the group. However, a link to Protopic® ointment treatment has not been confirmed or refuted on the available evidence so far.". Hi, my name is David and live in Sweden. It started with a little with dot beneath the skin on my lower lip. The painful lips were what took me to the dermatologist. The lips got a little better at first but soon turned bad again. You can fight it. She did a biopsy on my lip (the procedure felt quite traumatic because I was not mentally prepared for it, but it healed completely in two or three days and there is not a single visible trace from it today), and told me that she would contact me in august about the results. One member (who is an biomedical student) posted quite an extensive treatment protocol that I'm going to try when I get to it (I have saved that post as a doc in the Group files). Exfoliative cheilitis is a rare reactive condition presenting as continuous peeling of the lips. * Next stop was a chinese doctor. for me to use for two weeks. There’s a whole community with exfoliative cheilitis online (chapped lips) like myself, dealing with it for more than 20 years. , and told me to lay off the fish. Just wanted to make a super short update (just to show I am not dead n' gone... wow it has been almost a full year since my last post). He said it was seborrheic dermatitis. I hosted a party with a friend two weeks prior to the symptoms, and shared my glass with many of the attendees. According to the patient information leaflet Protopic have some common. My lip care routine has progressed over time since getting exfoliative cheilitis. According to the retailer (which I spoke to) it's 10% calendula. * Doctor #8 gave me the steroid creme Emovat 0,05%. During the following two year I went to many doctors and tried many treatments. • Mainly affects young adults <30 years with personality disorders. The urge is to scrub or peel them, both of which exacerbate the issue substantially. Regular peeling, but very thin flakes. She told me to use vaseline instead of olive oil and hope for the best. This is a chronic peeling and cracking of the lips. 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