Thank you Angela I will look through this , your site has helped so much . Before this takes place the Continuing Healthcare dept at the local NHS (Clinical Commissioning Group) should give you information about the process and give you notice of when the first stage will happen. You could also report any care home that tries to get your father to pay unnecessary (illegal) fees. It’s possible, Naomi – and it’s a good point. I feel so impotent and unable to know what to do – I’m so upset, frustrated and feel so guilty that she is unhappy – where do I start to get her home. She has started to get AA, I have taken 2 weeks off work to support her after her constant falling. This sparked off an investigation which culminated in the manager being sacked and my husband was given 1-1 care for about six weeks. Any comments / suggestions or advice would be gratefully received. They have not done a capacity assessment and we feel we are being pressured to do something which we know will have a negative impact on mum. All comments are moderated in line with our Acceptable Use Policy and our Terms of Website Use. We are waiting for my Husband to be assessed on Monday. We have been managing in this way ever since, with my brother or I taking turns to give my husband a break when possible (my family home is 150 miles from my father and my brother lives 200 miles away). Does it automatically transfer to the new home? The house would need to be adapted on the ground floor to properly accommodate my mother, and we would be happy to have her with us permenently Q if the space was adequate. 24-hour live in care at home could cost from around £50,000 a year. It is arranged and funded by the NHS. So much for the push to get more people cared for at home! It may be helpful if I explain that the NHS 24 Unscheduled Care Service is a Nurse led Advice and Referral Service. (Note: a Mental Capacity Assessment is not a general assessment of cognitive ability; instead it’s about a person’s capacity to make a specific decision about a specific things at a specific time.) Chief Exec at the local NHS, Head of Adult Care at the local authority, Head of Safeguarding at the local authority, etc. Mums condition has deteriorated I have telephoned Chc to request a reassessment they have told me because mums joint funded with social services they have to request the reassessment. I have heard of this happening before, and it is sometimes done to put pressure on a family to move someone into a care home, rather than having them at home. It doesn’t look like that’s ever going to happen as the pressure sore is almost healed now & the senior nurse at the home told me that mum needs to be repositioned every 2 hours even after it’s healed completely (I suspect the home have a vested interest in keeping mum there). Why choose live-in care? He relies fully on the carers at the home to the extent they even order his food for him as he cant do it himsel! By clicking Subscribe you also confirm you have read and accepted our Privacy Notice. You may need to ask a solicitor for an accurate answer on that, though. This will also help regarding choice of care provider: http://caretobedifferent.co.uk/continuing-healthcare-funding-and-choice-of-care-home/ (whether it’s in a care home or at home). They have said that they will pay the full cost of nursing care in a nursing home, but mum wants to go home. 24-Hour Home Care We’re Redefining Home Care with Around-the-Clock Services. I my self am over an hours drive and I am 63 years old and have a daughter with active crohns who I have to look after when she is ill and who lives over an hours drive away. it doesn’t matter whether a person is at home or in a care home. If not, you may be able to apply for a deputyship order. Also if government funding is in place can we still get him assessed for CHC and have it funded by the NHS instead of local authorities. I was given the impression, by the onward care nurse that the CCG would consider my father’s needs were not ‘unpredictable enough’ to be considered as eligible for CHC. Not everyone feels comfortable helping family or friends with personal care. The information and links on this page should also help: http://caretobedifferent.co.uk/nhs-continuing-healthcare-faqs/. If you’re receiving local authority care, you could write to the Head of Adult Social Care and complain bitterly – plus outline the likely consequences if not action is taken immediately. We have to pay the Council approx £300 each month towards the cost. My Dad has very high, complex care needs and lives at home with my Mum. Families members should not be expected to provided the actual care needed. A Best Interests meeting was arranged for April but this was cancelled on the day because CHC didn’t have anyone to chair the meeting or to take minutes – yes, really! You can access urgent care from NHS 24 on 111 in different ways. My Mum’s in hospital, has 6 weeks or so to live, we’ve been told she’ll be Fast Tracked. It was working well and gave my mother time to breath and get on with running the business. Thanks very much Vicky, you are right I think we will have a battle on our hands but we will not give up. We went to an Multidisciplinary Team (MDT) review meeting which turned out to be a discharge planning meeting. The model. This was means tested before CHC was agreed but my social worker says I still have to pay the shortfall of £5000* for both bathroom and ramp. This is causing a huge problem for the family as my sister is having cancer treatment so can’t help and my brother lives over 3 hours drive away. "I would like to see 24-hour care restored for Ron Fraser because he deserves to stay in his own home." We didn’t as mum had as they call ‘varying capacity’ and we knew they would force her into a home if we pressed hard. In most states, live-in caregivers are entitled to 8 hours of sleep within a 24-hour care period. Falls are a risk for the elderly (1/3 people aged 65+ fall each year in the UK, 1/5 of which lead to serious injury) and having someone living in … Thanks deb. We really want him home but they say he won’t get the care he needs at home, even if he is awarded chc he will need two carers all times. What a great programme BBC2’s Hospital is, shining a light on our amazing healthcare with dedicated staff working in challenging conditions. We are heart broken as we want him home he wants to come home , it’s making my mum ill with worry. You may want to carry on living at home but visit a hospice during the day for the care and support you need. 24 Hour Home Care. It is complicated that she has extreme issues with communication though she can understand things mostly. So if the current visits are not enough, this is potentially neglect by the CHC/CCG. The district nurses have also said she needs repositioning 2 hourly as well. You can normally find out who they use and check if you’d use them so if it came to it you could have a simple transfer from self funded to CHC. Any help would be appreciated as we are desperate. & a 2nd carer to come 4 times daily for personal care. Equally, a care home that asks for a top up when a person is funded by CHC is acting wrongly; they are already paid by the NHS and have no right trying to get more money from the person in care. I think we will have to pay at least for a while just to get him home with my Mum. Just let me know. Following this assessment Social Services said they would fund £250.00 per week towards her care however they recommended a Decision Support Tool (DST) and said they would wait for that outcome first. 24-Hour Care at Home. All of this is a lengthy process. Hi If you receive NHS continuing healthcare in a care home the NHS pays your care home fees. I have to look after mum 24/7 she cannot be left for a minute.i fell the Nhs r paying the wrong people too,I do everything. Particularly where people are forced to go into a home instead of staying at home, which would be their choice, by the NHS refusing the right level of support and funding? Close menu. Alongside this dad has short term memory loss, dementia and can’t look after himself. By clicking Subscribe, you agree that we may send you regular information bulletins by email. 24-hour Care Case Study: Anne. Can you please tell me if this is right from what I have read from your site , what they are saying and doing all seems wrong ? they have a Primary Health Need. Whereas 24 hour live in care at home ranges from £875.00 per week, and you also get a one to one service compared to a one to five service in a care home setting. 24-hour live-in home care is available for elderly people or younger adults. As she is of sound mind we have to comply with her wishes. Indeed, they cannot be topped up because the NHS should be covering all needs in the first place. Sadly, it seems increasingly common for local NHS commissioning units to try to get away with providing less care than is needed for people at home. I am in the process of making an official complaint after months of trying to get the quality of care I think she needs. However we have just been reassessed and they have said we need to cut down hours. This may include creative and complementary therapies and rehabilitation, such as exercise programmes. We have been through something similar today. My father needs two carers at one time to move him and our previous care package allowed us to have a one carer most days and a second to help with moving. Marie Curie provides some practical advice about caring for someone with a terminal illness, including helping them wash, take their medication, and stand and walk. Read further information on choosing the right care locally to support your healthcare needs. Find out about the support available for carers. Had a fast track meeting to fill in the application form with my sister which they (palliative care nurse and community liason nurse) were trying to figure out a care/discharge plan at the same time. Mum can be awake with Dad from 7pm in the evening until 6am the next morning and then be looking after him all that day. Maybe others with similar experience to you will chip in. The annual average cost of a live-in caregiver is £44, 000 - £54,600 a year for full-time 1-to-1 care. My 70 year old mum is currently supplementing the Continuing Healthcare (CHC) care package. all assessed care needs. – and perhaps your MP as well. nPractice guidance One of Age UK’s trained carers (sometimes called a ‘personal assistant’) will visit you at home at agreed times of the day, or in some cases will provide care over the entire 24-hour period. Lorraine if they have fast tracked your mum and it was accepted the district nurses need to contact the palliative care centre and request night sitters. You could push for safeguarding and report them anywhere you can. My service user needs 24/7 2:1 support which is provided by 2 staff when family are at work and 1 staff + family member all other times. She went into hospital for an operation after a fall and breaking her hip. My Mum, suffering from Parkinson’s and dementia the last 9 years, has recently been awarded Continuing Healthcare funding – although it took 6 months rather than the 28 days, due to no-one wanting to take responsibility (trying to get retrospective too at the moment). Regards, Hi My mum had a stroke 7 weeks ago, she is still in hospital. In the current climate of increasing pressures on our healthcare system, our NHS people potentially face significant stresses. NHS England’s lead for the Hospital to Home programme looks at how the NHS Long Term Plan has provided, for the first time, a realistic model to support older people with long term conditions or complex health needs at home and in their own community:. i dutifully replied that the only people depriving her of her liberty (in other words choice) were the panel deciding not to pay for physio as my mum wants to try and walk and they are refusing her the funding in order to help her. Thanks, My mother has 2 carers 4 times a day, lives alone and is bedbound. The National Framework guidelines reinforce the point about the care setting: https://www.gov.uk/government/uploads/system/uploads/attachment_data/file/213137/National-Framework-for-NHS-CHC-NHS-FNC-Nov-2012.pdf I don’t know the details of your case, of course, but if you are only given 3 hours care per day – and yet most care homes in the area can’t care for your husband even when that’s full time – there would seem to be a massive risk and a huge potential for neglect just having 3 hours, and of course there may well be a safeguarding issue here. Another formal discharge/fast track meeting has to be arranged to apply for funding!!!!! Thank you so much Lynda I really appreciate that. Your Home Care Package funds can be used to pay for 24-hour care. 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